does your mom know you have empty nose syndrome? Just trying to figure out why your mom is starting to lose respect for you when you are dealing with a life altering disease. Here is the buzzfeed article that depicts some aspects of ens. https://www.buzzfeed.com/joeloliphint/is-empty-nose-syndrome-real-and-if-not-why-are-people-killin#.ekbBEJ3BD I think the most important parts are describing the experience of not being believed by doctors. I'm sure you have already read it though. Maybe it would help other people understand.