Thanks guys. I guess might next things to do are find out from the hospital about the specifics of my operation, and possibly get the money together to see Dr Das.

If my hospital doesn't give me good info and no CT scan shall I get a new CT scan before seeing Dr Das?

Also if I do get one and I post it here, will people be able to tell if I have ENS just from looking at it?

By the way, I know the visible symptoms are posted are not the most useful ones to post. Having been diagnosed and misdiagnosed with miscellaneous crap in the last 8 years where no-one who had those things "looked" like I do, I thought I would just see if there are people who have this who look like me. Probably a backwards way of doing things.