Reco wrote:
So what you think is, although I still have a large portion of both turbinate/tissue left, my nasal nerves might be damaged from the surgeries, and have not been recovered properly. My first turbinate reduction surgery was done in 2009 by cutting using surgical scissors. The doctor performed the surgery twice in 3 days (he felt he did not reduce enough tissue in the first time), and I got a fever few days after that, which might lead to the nerves in the turbinate not recovering properly. To be honest, I don’t really know what technique did the ENT surgeon use for my second surgery (septoplasty and turbinate reduction), since I was put to sleep during the surgery and I did not ask him how he performed the operation. At that time, I did not know that there are more than one techniques to reduce turbinate other than cutting with a pair of scissors. But I think 90% he performed the operation by cutting using scissors. =9pt =9ptYes, I also think my anterior inferior turbinate has been reduced (probably 3 times, twice by the first surgeon, and once by the second surgeon), because during my first surgery, I was awake and I could feel that the surgeon did not stick the scissors deep enough to reach other part of the turbinate except the anterior portion. And this might alter the airflow dynamic to a different state I suspect.

Thanks again for your link to the CT scans. Did you also get your anterior inferior turbinate resected? And I noticed that there is a video in the link you provided. The doctor in the video said that you are a good candidate for the nasal injection. I wonder if he is Dr. Das? And did you get injection from him? Because I am also thinking to get a PRP + Acell injection from him in the future. He seems to be a very knowledgeable doctor and cares about the patients.

Sorry for so many follow up questions.
Regards. 


The main symptom of ENS is the lack of airflow (or sensation of it) through the nose.  It is hard to describe and from my research some describe it as feeling they are not able to take a satisying breath of air all the way to a 24/7 feeling of suffocation.  I have the 24/7 suffocation sensation.  The sensation feels just like that feeling you get when holding your breath for too long (or being under the water for too long) and you are running out of oxygen in the lungs.  This sensation for me is 24/7 and makes it next to impossible to sleep more then 2 hrs straight.  The theory is that the nerves in the nose are sending conflicting information to your CNS that you are not breathing while your lungs/throat do sense the air.  This puts your body into a constant state of "fight or flight" which is extremely tiring.  It seems more doctors believe that the front (anterior) part of the inferior turbinate is filled with the most nerves.  This makes sense in that it will allow the body to rapidly adapt to the incoming air for heat/moisture.  If this is true then resection of the front IT (like you and I had) would be more likely to lead to ENS.  It is possible that you had more resected then is visible in your CT scans because the remaining tissue my "hypertrophy" and fill in the air gaps.  Perhaps nerves and the proper cells may not regrow.  So the question for you is do you have this suffocation sensation?  If so maybe it is ENS.  I knew for sure that mine was ENS after learning about it. 

That is Doctor Das in the video.  I got one injection from him so far.  He is a great ENT who truely has a firm understanding about ENS.  I would recommend a consulation with him if you think you have ENS, or for any other nose issues you may be having.   I will not put words in his mouth as I am not a doctor, so I may be wrong here; but I believe the main part with Acell is to aid in bulking up the missing tissue which doesn't seem to be a problem for you per the CT scans. I have read that Acell can signal the body to call in stem cells for repair, but check with Das if Acell would be good or bad for you.  Another option he will be offering soon is adipose (fat) stem cells with PRP and/or Acell.  Adipose stem cells with PRP may be better if you have mass but have nerve damage as I have read adipose stem cells have been shown to help in nerve regeneration.  I have also read adipose stem cells have helped the mucosa produce more moisture.  It is good that you have some moisture on your pinky, and that you can sense some amount of air.  I think ENS can greatly vary in severity/symptoms.  It really depends on your situation and consultation with a good ENT (I would highly recommend Das). 

It also looks like your middle turbinates *may* be stuck/glued/adhered to your septum... Not sure what kind of implications/symptoms that could produce though...

Edited 2 times by cr250bronco Mar 14 16 3:52 AM.