ChiGuy wrote:

yobuck285 wrote:
Hi Chi,

Thanks... It's good to know I'm not the only one.  And thanks for being mature enough and brave enough to speak up about your own despair.  There's just a breaking point, I guess, and it comes on so suddenly.  Today, I am just so exhausted I haven't been able to get the simplest thing done.  I keep having to lie down.

A friend is urging me to get the sleep study but I've hesitated because I've heard that

    1.)  They don't pick up problems from ENS only register Apnea issues
   
    2.)  People on this site have mentioned how the CPAP dries them out even with a humidifier.

Trust me, I want to get better!  It's just that, well, I've tried everything and nothing really works.  So there's a point where I stop trying and just try to deal with it instead.

You say the BiPap has only made a slight difference but you still feel like crap during the day?  So, do you mean you only feel better in the morning and then you feel exhausted the rest of the day?  I agree that good sleep is important and that my outlook right now is pretty crappy in general..  lol...slightly obvious.

Thanks Chi

 It's friggin' 2015!!   A cure has got to be just around the corner - maybe it'll be tomorrow and maybe next year, maybe in 5 years - but if it's tomorrow, how silly will you see yourself tomorrow knowing that you despaired when your life was just about to change.  Face every day courageously, have hope and hang in there.

 


 While it is true that we are living in a time where technology is advancing fast when is it going to be applied to treat ENS, the doctors that are treating ENS are still using the same techniques and materials for how many years now.
 Not to mention the costs, where are we going to find the money for all the research it doesnt happen overnight, and even then if they can come up with THE solution how can we pay for such an expensive treatment that only "rich" people can afford, they already charge thousands of dollars for the current available treatments do you really think its going to get cheaper by the time they can provide an appropriate solution.